Teens Urge Congress To Help Their Siblings With Cystic FibrosisTeens from across the United States whose siblings have cystic fibrosis will press their elected officials in Washington, D.C., June 24, to fund drug research and increase access to clinical trials for those with rare diseases. Their goal is to speed the development of new drugs for people who need them most...
Detection Of MRSA In Cystic Fibrosis Patients Associated With Shorter SurvivalPatients with cystic fibrosis (CF) who have Methicillin-resistant Staphylococcus aureus (MRSA) detected in their respiratory tract have worse survival compared to CF patients without MRSA, according to a study in the June 16 issue of JAMA. The most common cause of death in CF is respiratory failure secondary to pulmonary infection...
'Orphan Drug' Research Offers HopeIn addition to their suffering, rare disease patients often have to face the harsh reality that few pharmaceutical companies will ever be able to offer new treatments for their condition because the costs of new treatments will never be recovered from such a small market. But there are ways they can be helped. The U.S...
Insight Into The Future Of Cystic Fibrosis Offered By Older PatientsAn emerging population of middle-aged cystic fibrosis patients contains significantly more females and includes a large proportion of patients who lived for decades without a diagnosis or specialized care, according to research published by researchers at National Jewish Health...
Gregory Downey, MD, Honored For Scientific Accomplishments Gregory Downey, MD, received the 2010 Recognition Award for Scientific Accomplishments at the American Thoracic Society's (ATS) International Conference on Monday, May 17. Dr. Downey, Executive Vice President of Academic Affairs and Professor of Medicine, Pediatrics and Immunology at National Jewish Health, has over 190 publications to his credit...
MP-376 Safe And Effective For Treatment Of P. Aeruginosa In CF PatientsNew possible treatment to treat P. aeruginosa in cystic fibrosis (CF) patients appears to be promising, according to research to be presented at the ATS 2010 International Conference in New Orleans. Approximately 80 percent of CF patients develop chronic P. aeruginosa lung infection, and antibiotic resistance is an increasing problem...